NEW YORK and MIAMI, Jan. 10, 2018 /PRNewswire-USNewswire/ -- The Parkinson's Foundation today announced the enrollment of the 10,000th Parkinson's patient and the discovery of critical new learnings in what represents the largest clinical study of Parkinson's disease in history. Launched in 2009, the study has grown from a small pilot to 29 expert clinics in five countries and serves as a platform for clinical studies to improve the lives of everyone with Parkinson's.
Specifically, the"Parkinson's Outcomes Project" evaluates the complete range of factors associated with Parkinson's disease: medications and other treatments, motor symptoms, cognition, anxiety and depression, and caregiver burden. The study, which includes more than 100 people who have lived with Parkinson's for more than 30 years and 83 people diagnosed before they were 30 years of age, covers more than 25,000 clinical visits and input from almost 9,000 family care partners. Critical discoveries from the study include:
Regular neurologist care, which could save the lives of thousands of people every year, should be better prioritized by Parkinson's patients and caregivers
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Greater attention should be paid to physical activity, as increasing exercise and general movement to at least two-and-a-half hours a week slows the decline in quality of life
Mental health should be better prioritized, as depression and anxiety are leading factors determining the overall health status of patients
Gender differences from informal family caregivers for women with Parkinson's is putting them at a disadvantage, and greater awareness is needed. Women with Parkinson's are more likely to have a paid caregiver than men at the same stage, unlike men who are more likely to rely on their spouses and family members for support with everything from daily care to doctor visits
"When the foundation launched the Parkinson's Outcomes Project nine years ago, our goal was to understand the impact of Parkinson's on everyone living with the disease. We have obtained a wealth of information in what now represents the broadest and most inclusive patient population ever assembled in a clinical study of Parkinson's," said Peter Schmidt, PhD, Senior Vice President, Chief Research and Clinical Officer of the Parkinson's Foundation, who leads the study. "The data we are collecting is informing trials to deliver new and better therapies."
Added Thomas Davis, MD, Director of Movement Disorders at Vanderbilt University, study co-chair: "This project is truly innovative in that it not only follows thousands of patients over time, but that it studies everyone with Parkinson's, from the newly diagnosed to people who have lived with the disease for 30 years or more. We're working to ensure that every patient receives the best possible care, no matter where they're seen."
